Live your best life with Lymphedema.

Dana

“I have good days and bad days, but I do not let Lymphedema define me. I am still extremely active and will not let it stop me. I have learned to be my own advocate by doing tons of research on the chronic illness. It is through this research that I have been able to connect with others like me” – Dana.

My name is Dana and I grew up in NJ but for the past 10 years I have resided in Virginia. It is here that my husband and I are raising our 7 year old twins, Jack and Lila. I have always been active. Growing up I swam, played field hockey and in college got into running. Today, I am an avid runner. I run with two of my very dear friends every Saturday morning. It is truly my therapy.

Last year, I had 2 swollen lymph nodes in my groin. My primary care Dr didn’t think they needed to be removed, but with a strong family history of cancer I saw a surgeon. She wanted to take them out and told me it was a minor surgery with very little risk. She never told me anything about lymphedema. To this day, that weighs heavy on me. I wonder if she didn’t realize that even taking one node out can forever change a persons life.

Today, I am learning to accept my new normal. I have found the courage to fully embrace it. My lymphedema affects my leg and butt area. I have good days and bad days, but I do not let it define me. I am still extremely active and will not let it stop me. I have learned to be my own advocate by doing tons of research on the chronic illness. It is through this research that I have been able to connect with others like me.

At first, I felt so alone. Today, I see how so many people suffer from lymphedema and how we truly can make a difference. I talk to anyone and everyone about my condition. I want others to learn about it and be aware of the risks associated with developing it. This is one of the many things that chronically motivates me.

I travel a ton for work. I am in sales and I cover the entire state of Virginia. I am still finding what works best for me with the travel and my lymphedema. It’s a process and I am trying to see what products work best. I love my job and will not let lymphedema stop me from doing what I love. This too motivates me.

Finally, my family motivates me. I need to be there for my kids. I don’t want them to remember me being sad. I want them to think of me as brave and courageous. My husband is my rock. He has been my support system and has helped me navigate the health care system. He won’t let me let it define me. He will not let me give up. He is helping me choose strength.

Lymphie things I can’t live without:
My flat knit hose
MLD
My physical therapist
Solidea strong active biker shorts? It is an amazing product that I have been running in them! They have helped control my swelling on long hot runs.

Find Dad here on Instagram: @dlplj

Contact Us

Chronically Motivated Monaco, 98000. chronicallymotivated@gmail.com

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